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Funding Priorities for Us

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Local vs. National

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PCS is Physiological

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Post-TBI Syndrome Diag.

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Psychologist Training

PTSD (Post Traumatic...)

PVS to PWUS

QEEG

Raising Money to Promote

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Removal of Life Support

School Age Kids with ABI

Skiing and Helmets

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Strokes are not TBI's

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Public Policy and Advocacy
Index of Position Statements


This is an index and compilation of the policy statements of the Brain Injury Network, an all brain injury survivor brain injury advocacy and policy nonprofit organization.  These policies were developed exclusively by members of our brain injury survivor community, for example in our SABI Advocacy and Policy Forum and in survivor meetings in our community. These policies were developed without the direction or control of any other third party stakeholders such as service providers, attorneys, doctors or researchers. We are continuously formulating policy on topics of interest to our community.

These position statements have been approved by our Board of Directors. Our board is made up of individuals who have sustained acquired brain injuries (ABI's) from traumatic brain injury (TBI, head trauma, skull fracture, MTBI, diffuse brain injury, concussion); stroke; aneurysm; brain illness (Meningitis, Encephalitis); or anoxic or hypoxic brain injury; etc. We present here the kind of public policies we, the brain injury survivor community, would like to see encouraged, adopted or otherwise championed by the public (and private) sector. First the policy topics are listed in alphabetical order in an index. Under the index the actual policies are shown in the order in which they were approved by the Brain Injury Network Board of Directors.

Policies in Alphabetical Order:

Safety First   (10-18-08)



Ability Rights   (1-11-11) 

ABI (Acquired Brain Injury) Subclassification Hierarchy   (6-12-10)  

Abuse, Exploitation, Manipulation and Victimization of People with Brain Injury  (6-13-11)
 
Accurate Reporting (12-9-12)     
 
Advocacy Agencies  (10-18-08)   

Advocate Competency (6-13-09)      

Advocates: Disclosure  (6-13-09)      

Assessments  (2-21-09)    

Assisted Living Facilities  (12-11-10) 
 
Athletics   (3-11-10) 
 
Attorney Solicitations Involving the Brain Injury Community on Social Media Platforms   (9-8-13)   



Best Practice Guidelines  (12-28-09)

Bicycle Helmet Law  (6-13-09)
 
Brain Injury and Parental Rights  (3-17-13)                 

Building Code Standards  (10-18-08) 

Brain Injury Community   (12-28-09)  
            


Civil Rights   (1-11-11)    

Classification of TBI   (6-13-09) 

Clinical Research   (9-12-09)

Cognitive Retraining (also called Cognitive Therapy or Cognitive Training)   
(3-11-10)        

Community Reintegration (Reintegrative Services)   (3-11-10)  

Comprehensive Health Reform   (6-13-09)
 
Concussion and Sports or Other Athletic Activities (3/12/12) 
 
Conflict of Interest in Medical Research   (9-12-09) 
 
Counselor Training (9-12-09) 

Crime   (10-18-08)
 
 
 
 

Department of Mental Health   (6-13-09)
 
Devicing While Driving (6-8-13)

Dignity   (1-11-11)  [See also Dignity in the Survivor Priorities policy dated 9-12-09.]  

Disability Rights and Issues  (1-11-11)

Disclosures, Advocates  (6-13-09)

Disclosures, Medical Providers  (6-13-09) 

Disclosures, Researchers  (9-12-09)    

Disclosures, Web Sites  (9-12-09)  
    
Doctor Education  (10-18-08) 

Driving while "Devicing" (6-8-13)      

Drug Companies  (10-18-08) 


Empowerment, Patient  (9-12-09)

Exploitation   (6-13-11)

Exposing Brain Injury Survivors' Identities   (6-12-10) 

 
 
Feeding Tube  (9-9-12)
 
Financial Institutions  (10-18-08)   

Fluorescent Lighting  (10-18-08)
 
 
Food and Water (9-9-12)           

Funding Priorities for Survivors  (6-13-09)



Gold Standard Research Studies   (9-12-09)  



Helmet Law   (2-20-09) 

High School Graduation   (10-18-08)   

Hospital Privacy   (10-18-08)  

Hospital Settings  (10-18-08)
 
Hospital Trauma Centers in the U.S.A.  (12-15-13)    

Human Research Guidelines  (10-18-08)  

Human Rights  (1-11-11)



Identification as People  (10-18-08)    

Incarcerated Criminals with TBI  (9-04-10)


Law Abiding Survivors (We are the great majority.)   (9-4-10)

Law Enforcement  (10-18-08)
 
Laws and Legislation (12-12-12)
    
Least Restrictive Living Environment  (6-13-09)  
 
Legal Rights    (1-11-11) 

Local and County Services  (10-18-08)

Local Services vs. National Centers; Costly Duplication    (9-04-10)  

Living Environments   (10-18-08)   

Locked Facilities  (2-21-09)     




Mandated Medical Review of Children (Youth) Who Have or Appear to Have Concussion or Other Brain Injury  (7-15-12)
 
Mandated Reporter Law   (6-13-09)

Manipulation   (6-13-11)  

Marginalization  (10-16-11)   
 

  

Medical Device Makers  (6-13-09)   

Mental Illness  (6-13-09)



National Centers; Costly Duplication  (9-04-10)   
 
Nursing Home Placements   (11-11-10)
 
Nutrition and Hydration (9-9-12)
  


On-Line Networking Web Sites  (6-13-09)

On-Line Recruitment of Patients   (9-12-10)
 
Operating Vehicle or Bicycle while Using Communication Device (6-8-13)  

Organizations or Providers Offering Money to People with Brain Injuries or the Families of People with Brain Injuries   (3-11-10)
 
 

 
Parental Rights and Brain Injury (3-17-13)
 
Patient Data Harvesting    (9-12-09)

Patient Empowerment    (9-12-09)

Patient Recruitment and Covert Devices Online to Recruit Patients to Medical Research Studies  
(9-12-10)

Patient Recruitment Methodology Online or through Social Media  (9-12-09)

Persistent Vegetative State  (PVS)   (3-12-11)    

Persistent Wakeful but Unaware State (PWUS)   (3-12-11) 

Physician Disclosures   (6-13-09)
 
Political Correctness (12-9-12)
 
Political Sensitivity (12-9-12) 

Post-Acute Medical Environments   (12-11-10)    

PostConcussion Syndrome   (9-12-09)     

PCS is Physiological in Origin   (12-11-11)   

Post-Secondary Education  (10-18-08)   

Post-Secondary Programs  (6-13-09)  

Post-TBI Syndrome Diagnosis, Research and Treatment  (9-12-09)  

Privacy On-Line   (10-18-08)

Privacy Settings on Web Sites Designed for Brain Injury Survivors   (12-11-10)

Profiting from Exposing Brain Injury Survivors' Identities  (6-12-10)   

Psychologist Training   (6-13-09)

Psychotropic Drugs, Use of   (11-11-10)
      

PTSD (Post Traumatic Stress Disorder)  (2-20-09)


  
QEEG     (2-20-09)




Raising Money to "Promote" Medical Research    (3-11-10)     

Recruitment Methodology
  (9-12-09)
 
Removal of Life Support  (10-18-08)

Research Studies  (9-12-09)



School Age Children with ABI   (6-13-09)    

Skiing and Helmets  (6-13-09)    

Social Community and On-Line Networking Websites   (9-12-09)

Social Communities for People with Brain Injuries  (6-13-09)

Social Media  (9-12-10)

Societal Norms and Conventions    (9-4-10)  

Sports or Athletics Activities: A Good Mind for Life is more important than a Trophy   (3-11-10)

 
Sports or Athletics Activities: Participation in or Resumption of after Concussion or Other Brain Injury    (7-15-12)    

Stakeholders   (12-28-09)  

State Brain Injury Survivor Councils  (6-13-09)  

Stigma and Brain Injury  (9-12-09)

Stigma, Marginalization and Stereotypical Thinking Regarding People with Acquired Brain Injuries   (10-16-11)

Strokes are not TBIs   (6-12-10) 

Subclassification Hierarchy of Acquired Brain Injury (ABI)   (6-12-10)

Support Group Facilitation   (9-12-09)

Survivor Advocacy   (12-28-09)

Survivor Advocates  (12-28-09)

Survivor Identity, Exposure of  (6-12-10)

Survivor Community Priorities   (9-12-09) 

Survivor Social Communities   (6-13-09)  

Survivor Stories in Media  (10-18-08)     



TBI is a Subset of ABI  (6-13-09)     

Terminology  (10-18-08)   

The Term "Survivor"  (9-12-09)  

Third Party Stakeholders   (12-28-09)
 

 
Universal Health Care   (10-18-09)     



Veterans, US Armed Forces   (2-21-09) 

Victimization   (6-13-11)   


Policies in Chronological Order: LINK

 

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