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Advocacy by and for People with ABI (Acquired Brain Injury)

   
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Public Policy of the Brain Injury Network
Policy dated 6-13-2011

Abuse, Exploitation, Manipulation and Victimization of People with Brain Injury:

We people with brain injuries bemoan the erosion of many of the rights every human being is entitled to such as our rights to live freely, independently and safely. Sometimes these losses are due to the circumstance of having sustained a brain injury, but all too often these losses are due to the unethical, exploitative actions of others. Many people with brain injuries are being abused,  manipulated, victimized  or taken advantage of in one way or another, or, indeed, in many ways. People with brain injuries make easy targets, especially those who, due to brain injury, now have cognitive challenges.

Just as there is elder abuse, there is what we call “Abuse of People with Acquired Brain Injury”.   Many people with acquired brain injuries are taken advantage of by unethical persons who use deception and trickery to get the upper hand over trusting, desperate survivors of brain injury. Ineffective sham preparations and treatments are sold to survivors. We can ill afford to spend our few discretionary dollars on unproven products and treatments.

Survivors are enticed to share confidential information online thus exposing us to crimes such as identity theft, bullying, harassment, and fraud. 

People with brain injuries are often sequestered in nursing homes with no daily enriching activity programming, no cognitive, physical, occupational therapy and, for those who are ambulatory,  no access to the outside world, such as day trips.

People with brain injuries are sometimes subjected to human research trials in which established human research guidelines are ignored by the researchers.
 
Programs such as support groups, college clubs and vocational or work programs for people with brain injuries are sometimes set up without the safeguards and protocols necessary to appropriately protect the participants.

Certain service providers put their own needs to operate a program on their own terms for their own financial or other benefit ahead of safety concerns, thus exposing people with brain injuries to unsafe programming.  Sometimes people or agencies charged with oversight of brain injury programming ignore unsafe situations or fail to take corrective action when there is wrongdoing in their program.  

People with brain injuries must be protected from dishonest, unethical, greedy people in this world. The more that can be done to shield us from wrongdoing the better. So, we are all for laws, regulations, standards and procedures that will help to protect our community.

 

Public Policy Index of Topics




ABI/TBI Definitions, About BIN, Ban Dangerous Sports,
Brain Injury Advocacy, Brain Injury Forums,
Brain Injury Support Groups, California Area BIN, Cautionary Tale, 
Classification, Contact Us, Chronic Disease?, 
Concussions and Football,   Distribution List, Easy Version, 
Family Caregiver Group,  Global Issues,
Health Care Reform, Home, How You Can Help,  
Human, Legal and Civil Rights, Independence,
 
Laws and Legislation, Links, Mandated Reporters, National Standards, 
News,  Online Community,  Please Donate, 
Postsecondary Program Protocols,  Post-TBI Syndrome, 
 Privacy Policy, Protect Your Privacy
 
Public Policy, Public Policy Index,  Research/Clinical Trials/Studies,
SABI Group,  SEARCH,  Shop OnLine and Help BIN,
Sign Our Address Book, The Survivor Movement,
  
Survivor Public Policy, The Survivors' Viewpoint,
Terminology, Who Really Represents Us, Who We Are,
Worldwide Brain Injury Community,
Your Privacy Settings on the Internet 

 

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